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New troubles
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AM
medicine forum beginner


Joined: 23 Jun 2006
Posts: 7

PostPosted: Fri Jun 23, 2006 5:24 pm    Post subject: New troubles Reply with quote

I am just returning from seeing the third ENT post-treatment (from
February). I had been impressed of his presentation and approaches at the
support group meeting, so I went there.

I told him some deterioration and possible new scratch in my throat in 2
days ago, after extensive bleeding.

He didn't pay much attention to that, after knowing that I have been seeing
by swallowing therapist.

He looked at my mouth and throat thoroughly and told to the assistant that
he
see post-radiation changes in mouth.
He said that hi thinks that some of my teeth need to be removed and I have
to see an oral surgeon.
I told him that my dentist told me that he will think about fixing my teeth
only after I will be back to normal food.
I asked if there is a way to make not real work on front teeth if specially
it is so problematic but some cosmetic thing as to not look ugly when
opening
the mouth.

Then he looks at my ears, and said that it's not good that my right ear is
impaired
and he advised to put a tube there. I told him that my docs. said that it
can be healed by itself within months
so I'd rather wait then have another intervention.

He looks at my nose by laryngoscope or what, showing to the assistant that
there is some septum on right side or.
Then he told me that he would like to do nasopharyngeal biopsy under general
anesthesia as he see in my right nose "something
that does not belong there" and suspects that it is cancer. I told him that
after having similar biopsy under general anesthesia I
had some throat wounds that seems never healed. He said there is no other
way. I told him that as I know if God forbid there is cancer in that primary
site, I could not get radio/chemo more, so what is the point to make biopsy?
I said that the last MRI
report says that it's good, but he insisted that main thing is what he see
by his eyes and he saw something on MRI disk too.
He said he will get touch with my treating team, but in any case he stays in
a point that I need biopsy.


Ugh! Now I have question( I hope Steph will answer too that's why
i am posting in 2 groups):
Let's say, God Forbid, that's C. in my right nose: Then it's either
residual or returned in primary site: in that case nothing much can be done:
No more radio/chemo, just will accelerate processes with biopsy like it
happened at first time.
But it also can be just some dead tissue after radiation? And the scans
periodically showed that whatever is there at least shrinking and not
growing. So, what will give a biopsy to me at all?

Thanks in advance.

--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/




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AM
medicine forum beginner


Joined: 23 Jun 2006
Posts: 7

PostPosted: Sat Jun 24, 2006 1:58 pm    Post subject: Re: New troubles: J? Steph? Reply with quote

"AM" <am@am.com> wrote in message
news:1151082861_12723@sp6iad.superfeed.net...
Quote:
I am just returning from seeing the third ENT post-treatment (from
February). I had been impressed of his presentation and approaches at the
support group meeting, so I went there.

I told him some deterioration and possible new scratch in my throat in 2
days ago, after extensive bleeding.

He didn't pay much attention to that, after knowing that I have been
seeing
by swallowing therapist.

He looked at my mouth and throat thoroughly and told to the assistant that
he
see post-radiation changes in mouth.
He said that hi thinks that some of my teeth need to be removed and I have
to see an oral surgeon.
I told him that my dentist told me that he will think about fixing my
teeth
only after I will be back to normal food.
I asked if there is a way to make not real work on front teeth if
specially
it is so problematic but some cosmetic thing as to not look ugly when
opening
the mouth.

Then he looks at my ears, and said that it's not good that my right ear is
impaired
and he advised to put a tube there. I told him that my docs. said that it
can be healed by itself within months
so I'd rather wait then have another intervention.

He looks at my nose by laryngoscope or what, showing to the assistant that
there is some septum on right side or.
Then he told me that he would like to do nasopharyngeal biopsy under
general anesthesia as he see in my right nose "something
that does not belong there" and suspects that it is cancer. I told him
that after having similar biopsy under general anesthesia I
had some throat wounds that seems never healed. He said there is no other
way. I told him that as I know if God forbid there is cancer in that
primary site, I could not get radio/chemo more, so what is the point to
make biopsy? I said that the last MRI
report says that it's good, but he insisted that main thing is what he see
by his eyes and he saw something on MRI disk too.
He said he will get touch with my treating team, but in any case he stays
in a point that I need biopsy.


Ugh! Now I have question( I hope Steph will answer too that's why
i am posting in 2 groups):
Let's say, God Forbid, that's C. in my right nose: Then it's either
residual or returned in primary site: in that case nothing much can be
done: No more radio/chemo, just will accelerate processes with biopsy like
it happened at first time.
But it also can be just some dead tissue after radiation? And the scans
periodically showed that whatever is there at least shrinking and not
growing. So, what will give a biopsy to me at all?

Thanks in advance.

--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/




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Steph
medicine forum Guru


Joined: 03 May 2005
Posts: 504

PostPosted: Sun Jun 25, 2006 6:00 am    Post subject: Re: New troubles: J? Steph? Reply with quote

"AM" <am@am.com> wrote in message
news:1151156846_22125@sp6iad.superfeed.net...
Quote:

"AM" <am@am.com> wrote in message
news:1151082861_12723@sp6iad.superfeed.net...
I am just returning from seeing the third ENT post-treatment (from
February). I had been impressed of his presentation and approaches at the
support group meeting, so I went there.

I told him some deterioration and possible new scratch in my throat in 2
days ago, after extensive bleeding.

He didn't pay much attention to that, after knowing that I have been
seeing
by swallowing therapist.

He looked at my mouth and throat thoroughly and told to the assistant
that he
see post-radiation changes in mouth.
He said that hi thinks that some of my teeth need to be removed and I
have
to see an oral surgeon.
I told him that my dentist told me that he will think about fixing my
teeth
only after I will be back to normal food.
I asked if there is a way to make not real work on front teeth if
specially
it is so problematic but some cosmetic thing as to not look ugly when
opening
the mouth.

Then he looks at my ears, and said that it's not good that my right ear
is impaired
and he advised to put a tube there. I told him that my docs. said that it
can be healed by itself within months
so I'd rather wait then have another intervention.

He looks at my nose by laryngoscope or what, showing to the assistant
that there is some septum on right side or.
Then he told me that he would like to do nasopharyngeal biopsy under
general anesthesia as he see in my right nose "something
that does not belong there" and suspects that it is cancer. I told him
that after having similar biopsy under general anesthesia I
had some throat wounds that seems never healed. He said there is no other
way. I told him that as I know if God forbid there is cancer in that
primary site, I could not get radio/chemo more, so what is the point to
make biopsy? I said that the last MRI
report says that it's good, but he insisted that main thing is what he
see by his eyes and he saw something on MRI disk too.
He said he will get touch with my treating team, but in any case he stays
in a point that I need biopsy.


Ugh! Now I have question( I hope Steph will answer too that's why
i am posting in 2 groups):
Let's say, God Forbid, that's C. in my right nose: Then it's either
residual or returned in primary site: in that case nothing much can be
done: No more radio/chemo, just will accelerate processes with biopsy
like it happened at first time.
But it also can be just some dead tissue after radiation? And the scans
periodically showed that whatever is there at least shrinking and not
growing. So, what will give a biopsy to me at all?

Thanks in advance.

--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/



A biopsy is the right thing to do, Araik.
It's not unusual to have abnormal looking tissue after a fairly large cancer
has been treated. It may be viable tumour, but maybe not. The only way to
know is biopsy
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AM
medicine forum beginner


Joined: 23 Jun 2006
Posts: 7

PostPosted: Sun Jun 25, 2006 1:39 pm    Post subject: Re: New troubles: J? Steph? Reply with quote

"Steph" <steph@vancouvers.island> wrote in message
news:1Epng.93991$IK3.76686@pd7tw1no...
Quote:

"AM" <am@am.com> wrote in message
news:1151156846_22125@sp6iad.superfeed.net...

"AM" <am@am.com> wrote in message
news:1151082861_12723@sp6iad.superfeed.net...
I am just returning from seeing the third ENT post-treatment (from
February). I had been impressed of his presentation and approaches at
the
support group meeting, so I went there.

I told him some deterioration and possible new scratch in my throat in 2
days ago, after extensive bleeding.

He didn't pay much attention to that, after knowing that I have been
seeing
by swallowing therapist.

He looked at my mouth and throat thoroughly and told to the assistant
that he
see post-radiation changes in mouth.
He said that hi thinks that some of my teeth need to be removed and I
have
to see an oral surgeon.
I told him that my dentist told me that he will think about fixing my
teeth
only after I will be back to normal food.
I asked if there is a way to make not real work on front teeth if
specially
it is so problematic but some cosmetic thing as to not look ugly when
opening
the mouth.

Then he looks at my ears, and said that it's not good that my right ear
is impaired
and he advised to put a tube there. I told him that my docs. said that
it can be healed by itself within months
so I'd rather wait then have another intervention.

He looks at my nose by laryngoscope or what, showing to the assistant
that there is some septum on right side or.
Then he told me that he would like to do nasopharyngeal biopsy under
general anesthesia as he see in my right nose "something
that does not belong there" and suspects that it is cancer. I told him
that after having similar biopsy under general anesthesia I
had some throat wounds that seems never healed. He said there is no
other way. I told him that as I know if God forbid there is cancer in
that primary site, I could not get radio/chemo more, so what is the
point to make biopsy? I said that the last MRI
report says that it's good, but he insisted that main thing is what he
see by his eyes and he saw something on MRI disk too.
He said he will get touch with my treating team, but in any case he
stays in a point that I need biopsy.


Ugh! Now I have question( I hope Steph will answer too that's why
i am posting in 2 groups):
Let's say, God Forbid, that's C. in my right nose: Then it's either
residual or returned in primary site: in that case nothing much can be
done: No more radio/chemo, just will accelerate processes with biopsy
like it happened at first time.
But it also can be just some dead tissue after radiation? And the scans
periodically showed that whatever is there at least shrinking and not
growing. So, what will give a biopsy to me at all?

Thanks in advance.

--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/



A biopsy is the right thing to do, Araik.
It's not unusual to have abnormal looking tissue after a fairly large
cancer has been treated. It may be viable tumour, but maybe not. The only
way to know is biopsy


Thanks for your answer, Steph.
But, again, let's say it's, God forbid, c.
Then no new radiation, nor new chemo or surgery could be helpful,
as I used maximum possible (73cGu) radiation in that area and it's almost
acceptable that chemo itself almost useless. And no surgery recommended on
that area. Then the only thing to get from biopsy is acceleration of growth,
if any.
Besides, I lost significant so-cold "quality of life" with the side effects
already: I don't no where it will take with any new "bombarding" with
available treatments.

What is your point in that case?
Thanks in advance.

--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/



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Steph
medicine forum Guru


Joined: 03 May 2005
Posts: 504

PostPosted: Sun Jun 25, 2006 2:41 pm    Post subject: Re: New troubles: J? Steph? Reply with quote

"AM" <am@am.com> wrote in message
news:1151242132_32495@sp6iad.superfeed.net...
Quote:


Thanks for your answer, Steph.
But, again, let's say it's, God forbid, c.
Then no new radiation, nor new chemo or surgery could be helpful,
as I used maximum possible (73cGu) radiation in that area and it's almost
acceptable that chemo itself almost useless. And no surgery recommended on
that area. Then the only thing to get from biopsy is acceleration of
growth, if any.

No, that's a myth
Under some circumstances, retreatment is possible.........

Quote:
Besides, I lost significant so-cold "quality of life" with the side
effects already: I don't no where it will take with any new "bombarding"
with available treatments.

What is your point in that case?
Thanks in advance.

Don't you want to know the truth? Even if it is an untereatable recurrence,
isn't it better to know?
Quote:

--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/



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AM
medicine forum beginner


Joined: 23 Jun 2006
Posts: 7

PostPosted: Mon Jun 26, 2006 5:18 am    Post subject: Re: New troubles: J? Steph? : some OT Reply with quote

"Steph" <steph@vancouvers.island> wrote in message
news:sgxng.92124$iF6.83477@pd7tw2no...
Quote:

"AM" <am@am.com> wrote in message
news:1151242132_32495@sp6iad.superfeed.net...


Thanks for your answer, Steph.
But, again, let's say it's, God forbid, c.
Then no new radiation, nor new chemo or surgery could be helpful,
as I used maximum possible (73cGu) radiation in that area and it's almost
acceptable that chemo itself almost useless. And no surgery recommended
on that area. Then the only thing to get from biopsy is acceleration of
growth, if any.

No, that's a myth
Under some circumstances, retreatment is possible.........

But it's much more uncertain than initial treatment, right?

Quote:

Besides, I lost significant so-cold "quality of life" with the side
effects already: I don't no where it will take with any new "bombarding"
with available treatments.

What is your point in that case?
Thanks in advance.

Don't you want to know the truth? Even if it is an untereatable
recurrence, isn't it better to know?

Truth? Sorry, that's so philosophical question - specially in this case -
and I don't want to go into OT.
If I live some 30 years or so, and live with decent quality of life,
I'll know that thanks God, there was not reccurence and there was Good Will
to me.
Otherwise, what make difference? Three years ago, then healthy Araik,
suddenly found himself in the center
of totally immoral and surrealistic game: "Now every day can be your last
day" and so... which continued even after
this NPC striked.

Anyway, Thanks for your response; I'll try to get advice from my RO or MO
doctors this week.
In any case, I am inclined to think that it's some dead post-radiation
tissue that the ENT saw???



--
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/



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Steph
medicine forum Guru


Joined: 03 May 2005
Posts: 504

PostPosted: Mon Jun 26, 2006 6:49 am    Post subject: Re: New troubles: J? Steph? : some OT Reply with quote

"AM" <am@am.com> wrote in message
news:1151299142_37659@sp6iad.superfeed.net...
Quote:


"Steph" <steph@vancouvers.island> wrote in message
news:sgxng.92124$iF6.83477@pd7tw2no...

"AM" <am@am.com> wrote in message
news:1151242132_32495@sp6iad.superfeed.net...


Thanks for your answer, Steph.
But, again, let's say it's, God forbid, c.
Then no new radiation, nor new chemo or surgery could be helpful,
as I used maximum possible (73cGu) radiation in that area and it's
almost acceptable that chemo itself almost useless. And no surgery
recommended on that area. Then the only thing to get from biopsy is
acceleration of growth, if any.

No, that's a myth
Under some circumstances, retreatment is possible.........

But it's much more uncertain than initial treatment, right?


Besides, I lost significant so-cold "quality of life" with the side
effects already: I don't no where it will take with any new "bombarding"
with available treatments.

What is your point in that case?
Thanks in advance.

Don't you want to know the truth? Even if it is an untereatable
recurrence, isn't it better to know?

Truth? Sorry, that's so philosophical question - specially in this case -
and I don't want to go into OT.
If I live some 30 years or so, and live with decent quality of life,
I'll know that thanks God, there was not reccurence and there was Good
Will to me.
Otherwise, what make difference? Three years ago, then healthy Araik,
suddenly found himself in the center
of totally immoral and surrealistic game: "Now every day can be your last
day" and so... which continued even after
this NPC striked.

Anyway, Thanks for your response; I'll try to get advice from my RO or MO
doctors this week.
In any case, I am inclined to think that it's some dead post-radiation
tissue that the ENT saw???





It's possible.
But only you can decide if you want the truth.
You can't just have the truth if it's good news, and not if it's bad news,
Araik.
It's all or nothing
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clifto
medicine forum addict


Joined: 14 Aug 2005
Posts: 56

PostPosted: Fri Jun 30, 2006 2:35 pm    Post subject: Re: New troubles Reply with quote

AM wrote:
Quote:
Then he told me that he would like to do nasopharyngeal biopsy under general
anesthesia as he see in my right nose "something
that does not belong there" and suspects that it is cancer. I told him that
after having similar biopsy under general anesthesia I
had some throat wounds that seems never healed. He said there is no other
way.

My biopsy site hasn't entirely healed yet, and I don't expect it to. I have
trouble swallowing some stuff, and some gets stuck in my throat. But if I
were in your position, I'd still want the biopsy.

--
Britney Spears' Guide to Semiconductor Physics
<http://britneyspears.ac/lasers.htm>
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AM
medicine forum beginner


Joined: 23 Jun 2006
Posts: 7

PostPosted: Sat Jul 01, 2006 2:59 am    Post subject: Re: New troubles Reply with quote

"clifto" <clifto@gmail.com> wrote in message
news:eepfn3-ekm.ln1@remote.clifto.com...
Quote:
AM wrote:
Then he told me that he would like to do nasopharyngeal biopsy under
general
anesthesia as he see in my right nose "something
that does not belong there" and suspects that it is cancer. I told him
that
after having similar biopsy under general anesthesia I
had some throat wounds that seems never healed. He said there is no other
way.

My biopsy site hasn't entirely healed yet, and I don't expect it to. I
have
trouble swallowing some stuff, and some gets stuck in my throat. But if I
were in your position, I'd still want the biopsy.

--
Britney Spears' Guide to Semiconductor Physics
http://britneyspears.ac/lasers.htm



And what it would give you in my position?:
1. It's not malignancy:
Then there is good sign that your throat will get more enduring
scratches/scars.

2. It's malignancy:
Almost there is no option to cure : No more radiation - just recently you
have done it;
No surgery; Only some very dubious internal radiation methods or what.
And the same time,
1. Again, hurting throat.
2. Provoking growth; though Steph is not agree with this, I got faster
growth myself last year both after neck
FNA and nasal biopsy.

Ygh!

Good to see you doing well after that lobo-thing!


Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/



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