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Should I bother doing anything now?
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Bob
medicine forum beginner


Joined: 05 Mar 2006
Posts: 27

PostPosted: Mon Jul 17, 2006 2:15 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

"Kara" <alabamalyme@usa.com> wrote in message
news:1153106310.975024.86440@s13g2000cwa.googlegroups.com...
Quote:


Oak Ridge Road sounds familiar (but it was a LONG time ago when I lived
near
there). I never knew where the Jewish Community Center was. I lived in a
two-story condo-like apartment or townhouse, about a block from the
coastal
waters (down in a little valley). It had two bedrooms and bathrooms
downstairs, and the kitchen and living/dining room upstairs. Then there
was
actually a sort of balcony (small balcony) on the 3rd floor. There were
several units like it, next door.
_______________
Actually, I think I have been there. One of my brother's friends lives
in one of those townhouses. I thought it was weird because the bedrooms
and bath were downstairs. And then we walked upstairs to the kichen and
living/dining room. There was a balcony off the 2nd floor. But, I didnt
see a 3rd floor.

I used to spend time every year going out that way (until my brother
got married). And also I used to date a guy in Santa Cruz.

I would always forget from year to year just how chilly it can be out
that way. I think "California" and automatically think warm weather.
But normal summer weather to me is 99 degrees with 99% humidity.

Yeah, the coastal areas of California can be a bit chilly at times, unless
you're down in Southern California, or even central California (aka San Luis
Obispo). I lived there too, for about 5 years. The climate was WONDERFUL
almost year-round! At that time, I was working at the Diablo Canyon Power
Plant. I really miss that part of the country, and that part of my life. It
was the last time I felt happy and healthy. But housing costs began to soar
while living there, and the went up so high, that I couldn't ever afford to
buy a home. I think, now a days, home prices down there are around
$1,000,000.00 or more! I suspect it's about the same in Aptos now.

I couldn't stand 99 degree temperatures with 99% humidity! I'd literally die
within hours! LOL. I have some friends that moved to Alabama (from
California) a few years back. I forget what part of Alabama now, but they're
more inland than you are, I know that much.

These messages are really "off topic" <g>. Feel free to e-mail me if you
have any more comments.

Sincerely, Bob
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Kara
medicine forum beginner


Joined: 15 May 2005
Posts: 36

PostPosted: Mon Jul 17, 2006 3:18 am    Post subject: Re: Should I bother doing anything now? Reply with quote

Quote:

Oak Ridge Road sounds familiar (but it was a LONG time ago when I lived near
there). I never knew where the Jewish Community Center was. I lived in a
two-story condo-like apartment or townhouse, about a block from the coastal
waters (down in a little valley). It had two bedrooms and bathrooms
downstairs, and the kitchen and living/dining room upstairs. Then there was
actually a sort of balcony (small balcony) on the 3rd floor. There were
several units like it, next door.
_______________

Actually, I think I have been there. One of my brother's friends lives
in one of those townhouses. I thought it was weird because the bedrooms
and bath were downstairs. And then we walked upstairs to the kichen and
living/dining room. There was a balcony off the 2nd floor. But, I didnt
see a 3rd floor.

I used to spend time every year going out that way (until my brother
got married). And also I used to date a guy in Santa Cruz.

I would always forget from year to year just how chilly it can be out
that way. I think "California" and automatically think warm weather.
But normal summer weather to me is 99 degrees with 99% humidity.
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Kara
medicine forum beginner


Joined: 15 May 2005
Posts: 36

PostPosted: Mon Jul 17, 2006 3:11 am    Post subject: Re: Should I bother doing anything now? Reply with quote

Once we experienced a storm, and sea water
Quote:
and kelp were washed up to the unit I was living in.
______________

You should try out hurricanes. Here in Mobile, Alabama we have plenty.
No sea kelp. Just alligators get washed inland.
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Bob
medicine forum beginner


Joined: 05 Mar 2006
Posts: 27

PostPosted: Mon Jul 17, 2006 1:54 am    Post subject: Re: Should I bother doing anything now? Reply with quote

"Kara" <alabamalyme@usa.com> wrote in message
news:1153084738.566012.241980@h48g2000cwc.googlegroups.com...

Quote:
I know where Redding is. About 5 years ago I was in Aptos for Pascha
(Greek Easter) and we had a lymie lamb cookout at my brother's place.
One of the Lyme patients who came drove from Redding.

Do you know where Temple Beth El (the Jewish community center) is? If
you take that road, my brother is at the very top of Oak Ridge Road. It
is a b'ful view. Jackson Brown lives behind him. Carolos Santana used
to live on the road, but I think his house burned down.

Hi Kara,

Oak Ridge Road sounds familiar (but it was a LONG time ago when I lived near
there). I never knew where the Jewish Community Center was. I lived in a
two-story condo-like apartment or townhouse, about a block from the coastal
waters (down in a little valley). It had two bedrooms and bathrooms
downstairs, and the kitchen and living/dining room upstairs. Then there was
actually a sort of balcony (small balcony) on the 3rd floor. There were
several units like it, next door. Once we experienced a storm, and sea water
and kelp were washed up to the unit I was living in. Boy that was a LONG
time ago! I bet Aptos has changed a lot since then (I think I was living
there around 1986 or 1987).

Bob Smile
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Kara
medicine forum beginner


Joined: 15 May 2005
Posts: 36

PostPosted: Sun Jul 16, 2006 9:18 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Bob wrote:
Quote:
Hi Kara,

I live clear up in Redding <g>. Amazingly, I lived in Aptos for about 1-1/2
years or more, while working for PG&E at the Moss Landing Power Plant.

Sincerely, Bob
_____________

I know where Redding is. About 5 years ago I was in Aptos for Pascha
(Greek Easter) and we had a lymie lamb cookout at my brother's place.
One of the Lyme patients who came drove from Redding.

Do you know where Temple Beth El (the Jewish community center) is? If
you take that road, my brother is at the very top of Oak Ridge Road. It
is a b'ful view. Jackson Brown lives behind him. Carolos Santana used
to live on the road, but I think his house burned down.


> >
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Bob
medicine forum beginner


Joined: 05 Mar 2006
Posts: 27

PostPosted: Sun Jul 16, 2006 1:54 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Hi Kara,

I live clear up in Redding <g>. Amazingly, I lived in Aptos for about 1-1/2
years or more, while working for PG&E at the Moss Landing Power Plant.

Sincerely, Bob

"Kara" <alabamalyme@usa.com> wrote in message
news:1153056854.761640.308380@b28g2000cwb.googlegroups.com...
Quote:
Where in NCalifornia, Bob? My brother is in Aptos.
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Kara
medicine forum beginner


Joined: 15 May 2005
Posts: 36

PostPosted: Sun Jul 16, 2006 1:34 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Where in NCalifornia, Bob? My brother is in Aptos.
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Bob
medicine forum beginner


Joined: 05 Mar 2006
Posts: 27

PostPosted: Sat Jul 15, 2006 11:54 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Thanks 3rd Man,

I haven't visited Lymenet.org in years... I'll have to take a look.

Sincerely, Bob


"the 3rd Man" <derdrittemann2003@yahoo.com> wrote in message
news:1153006517.211456.231950@m73g2000cwd.googlegroups.com...
Quote:

Bob wrote:
Good points 3rd Man!

I found the article on the "Neuropsychiatric Manefestations of Lyme
Disease," by Brian Fallon. I'm printing a copy of it now, and I'll take
it
to my psychiatrist Monday. We'll see what happens from there. Based upon
what I've read over the years, I don't believe Lyme is curable after it
has
"established" itself in the CNS and everyplace else in the human body.
But I
keep hoping...

Sincerely, Bob

Very best of luck to you, too, Bob...and you might want to try your
questions at Lymenet.org, if you haven't already...

...this place is more than a little crazy lately...
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derdrittemann2003@yahoo.c
medicine forum Guru


Joined: 11 Sep 2005
Posts: 1799

PostPosted: Sat Jul 15, 2006 11:35 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Bob wrote:
Quote:
Good points 3rd Man!

I found the article on the "Neuropsychiatric Manefestations of Lyme
Disease," by Brian Fallon. I'm printing a copy of it now, and I'll take it
to my psychiatrist Monday. We'll see what happens from there. Based upon
what I've read over the years, I don't believe Lyme is curable after it has
"established" itself in the CNS and everyplace else in the human body. But I
keep hoping...

Sincerely, Bob

Very best of luck to you, too, Bob...and you might want to try your
questions at Lymenet.org, if you haven't already...

....this place is more than a little crazy lately...
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Bob
medicine forum beginner


Joined: 05 Mar 2006
Posts: 27

PostPosted: Sat Jul 15, 2006 11:27 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Good points 3rd Man!

I found the article on the "Neuropsychiatric Manefestations of Lyme
Disease," by Brian Fallon. I'm printing a copy of it now, and I'll take it
to my psychiatrist Monday. We'll see what happens from there. Based upon
what I've read over the years, I don't believe Lyme is curable after it has
"established" itself in the CNS and everyplace else in the human body. But I
keep hoping...

Sincerely, Bob
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derdrittemann2003@yahoo.c
medicine forum Guru


Joined: 11 Sep 2005
Posts: 1799

PostPosted: Sat Jul 15, 2006 11:18 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Bob wrote:
Quote:

I stopped the antibiotics because they seemed to be doing more harm than
good.

I was on orals for several years.

Yeah, at some point, you sense they really aren't acomplishing
anything. I quit taking them as soon as I realized they were having no
effect.

But I do also have lingering symptoms...so that leaves us both with the
classic question...what is the cause? Damage? Autoimmune? Hyper-immune?

Dunno. No one does.

Ironically, emotionally I improved (while on antibiotics) but
Quote:
physically, I went WAY down-hill. I had bouts of yeast infections, etc. too.

Yeah. Just the lack of physical activity can really have neagtive
consequences.


Quote:
What I wanted most was an abx capable of entering the central nervous
system; like a cephalosporin (i.e.: Rocephin).

There are some orals out now...cephalosporins...Vantin, I think? My
biggest improvement came on Flagyl/Zithro.


But my "Lyme doc" was afraid
Quote:
to use it on me, because I had an allergic reaction to I.V. Keflin, during
an appendectomy (done when I was around 14 years old--after being infected
by Lyme). Keflin, apparently, is a close relative to Rocephin. Anyway, I
just broke out in hives, during the operation. (Could that have been a
herxheimer reaction, rather than an allergic response?)

I'm glad to hear you sense some progress with regard to the politics
surrounding Lyme Disease, and it's treatment. That gives me some hope!

Well, reason I am suggesting the possibility of a consult is sounds
like you have a complicated history and symptoms.

Me, I want to confer with experienced professionals...so that you can
come up with some sort of plan.

I have admittedly had very little experience with psychiatrists...so I
know there are some strong feelings with some concerning this.

Wish I knew better...I do not...but if it was me...I would try to work
with medical and psychiatric pros to get some review of your case
going...with an eye towards coming up with a plan.

Problem with internet medical advice is it's just as good as what you
paid for it...and maybe not even that.


Quote:

Sincerely, Bob

"the 3rd Man" <derdrittemann2003@yahoo.com> wrote in message
news:1153003708.707512.85750@p79g2000cwp.googlegroups.com...

Bob wrote:
Hi 3rd Man,

I live in Northern California. So travelling to NY would be impossible.
My
current psychiatrist doesn't even consider Lyme Disease a factor in my
psychological ailment(s). I'll have to do some research regarding a
psychiatrist familiar with the intracacies of Lyme involvement.

There are articles available on the internet concerning the
neuro/psychiatric manifestations of the disease. Brian Fallon,
Columbia...New York...is the guru of this stuff...the neuropsychiatric
manifestations.

I have never had contact with Fallon myself...but what I am wondering
is if you could find a psychiatrist who might consult with him or
someone similar...or if an LLMD could help facilitate that...a consult.

Sometimes that is the only option for some of us...was with me in the
beginning. Couldn't travel at all...so I worked really hard at setting
up a consult with a well-known Lyme doctor.

I wonder if your psychiatrist is not considering the possibility
because he/she thinks you must be now 'cured'? You know, the
conventional wisdom?

I haven't been on antibiotics since around 1998.

Why did you stop, may I ask? Symptoms subside...or...just cut-off?

On another note, seems nothing has changed in the past 10 years. There
are
still people (so called experts) butting heads with one another. I HATE
the
politics involved with the treatment of this disease. Who are you suppose
to
believe???

Frustrated Bob

Sorry, Bob...but actually I do sense some progress...maybe too late to
help some of us...but there is a growing awareness. Someday this thing
will hit 'critical mass'...it will get just to big to sweep under the
rug any longer.
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Bob
medicine forum beginner


Joined: 05 Mar 2006
Posts: 27

PostPosted: Sat Jul 15, 2006 10:59 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Hi 3rd Man,

Yes, I've read articles published by Brian Fallon (I think I have a copy of
his article, "Neuropsychiatric Manifestations of Lyme Disease," in my
archives). I'll print a copy and take it to my psychiatrist, and see what
happens.

I stopped the antibiotics because they seemed to be doing more harm than
good. Ironically, emotionally I improved (while on antibiotics) but
physically, I went WAY down-hill. I had bouts of yeast infections, etc. too.
What I wanted most was an abx capable of entering the central nervous
system; like a cephalosporin (i.e.: Rocephin). But my "Lyme doc" was afraid
to use it on me, because I had an allergic reaction to I.V. Keflin, during
an appendectomy (done when I was around 14 years old--after being infected
by Lyme). Keflin, apparently, is a close relative to Rocephin. Anyway, I
just broke out in hives, during the operation. (Could that have been a
herxheimer reaction, rather than an allergic response?)

I'm glad to hear you sense some progress with regard to the politics
surrounding Lyme Disease, and it's treatment. That gives me some hope!

Sincerely, Bob

"the 3rd Man" <derdrittemann2003@yahoo.com> wrote in message
news:1153003708.707512.85750@p79g2000cwp.googlegroups.com...
Quote:

Bob wrote:
Hi 3rd Man,

I live in Northern California. So travelling to NY would be impossible.
My
current psychiatrist doesn't even consider Lyme Disease a factor in my
psychological ailment(s). I'll have to do some research regarding a
psychiatrist familiar with the intracacies of Lyme involvement.

There are articles available on the internet concerning the
neuro/psychiatric manifestations of the disease. Brian Fallon,
Columbia...New York...is the guru of this stuff...the neuropsychiatric
manifestations.

I have never had contact with Fallon myself...but what I am wondering
is if you could find a psychiatrist who might consult with him or
someone similar...or if an LLMD could help facilitate that...a consult.

Sometimes that is the only option for some of us...was with me in the
beginning. Couldn't travel at all...so I worked really hard at setting
up a consult with a well-known Lyme doctor.

I wonder if your psychiatrist is not considering the possibility
because he/she thinks you must be now 'cured'? You know, the
conventional wisdom?

I haven't been on antibiotics since around 1998.

Why did you stop, may I ask? Symptoms subside...or...just cut-off?

On another note, seems nothing has changed in the past 10 years. There
are
still people (so called experts) butting heads with one another. I HATE
the
politics involved with the treatment of this disease. Who are you suppose
to
believe???

Frustrated Bob

Sorry, Bob...but actually I do sense some progress...maybe too late to
help some of us...but there is a growing awareness. Someday this thing
will hit 'critical mass'...it will get just to big to sweep under the
rug any longer.
Back to top
derdrittemann2003@yahoo.c
medicine forum Guru


Joined: 11 Sep 2005
Posts: 1799

PostPosted: Sat Jul 15, 2006 10:52 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Bob wrote:
Quote:
Hi 3rd Man,

I live in Northern California. So travelling to NY would be impossible. My
current psychiatrist doesn't even consider Lyme Disease a factor in my
psychological ailment(s). I'll have to do some research regarding a
psychiatrist familiar with the intracacies of Lyme involvement.

Bob...here...have a look:

http://www.columbia-lyme.org/flatp/staff.html
>
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derdrittemann2003@yahoo.c
medicine forum Guru


Joined: 11 Sep 2005
Posts: 1799

PostPosted: Sat Jul 15, 2006 10:50 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Kathleen wrote:
Quote:

Dont believe Joel, here.
He is not a scientist and has no website and no nuts.

I'm NOT "Joel"...you idiot.

Go fax some crap to the Chinese and Russian embassies.

I'm sure they are wondering if you are allright.
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derdrittemann2003@yahoo.c
medicine forum Guru


Joined: 11 Sep 2005
Posts: 1799

PostPosted: Sat Jul 15, 2006 10:48 pm    Post subject: Re: Should I bother doing anything now? Reply with quote

Bob wrote:
Quote:
Hi 3rd Man,

I live in Northern California. So travelling to NY would be impossible. My
current psychiatrist doesn't even consider Lyme Disease a factor in my
psychological ailment(s). I'll have to do some research regarding a
psychiatrist familiar with the intracacies of Lyme involvement.

There are articles available on the internet concerning the
neuro/psychiatric manifestations of the disease. Brian Fallon,
Columbia...New York...is the guru of this stuff...the neuropsychiatric
manifestations.

I have never had contact with Fallon myself...but what I am wondering
is if you could find a psychiatrist who might consult with him or
someone similar...or if an LLMD could help facilitate that...a consult.

Sometimes that is the only option for some of us...was with me in the
beginning. Couldn't travel at all...so I worked really hard at setting
up a consult with a well-known Lyme doctor.

I wonder if your psychiatrist is not considering the possibility
because he/she thinks you must be now 'cured'? You know, the
conventional wisdom?
Quote:

I haven't been on antibiotics since around 1998.

Why did you stop, may I ask? Symptoms subside...or...just cut-off?
Quote:

On another note, seems nothing has changed in the past 10 years. There are
still people (so called experts) butting heads with one another. I HATE the
politics involved with the treatment of this disease. Who are you suppose to
believe???

Frustrated Bob

Sorry, Bob...but actually I do sense some progress...maybe too late to
help some of us...but there is a growing awareness. Someday this thing
will hit 'critical mass'...it will get just to big to sweep under the
rug any longer.
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