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NEED help with colon cancer issue.
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madiba
medicine forum Guru Wannabe


Joined: 05 Jul 2005
Posts: 203

PostPosted: Wed Jul 19, 2006 1:11 am    Post subject: Re: NEED help with colon cancer issue. Reply with quote

J W <jonboy42@webtv.net> wrote:

Quote:
CEA had bgn rising from 2.5 to 12 overa two month period. They added
avastin to my foldox/oxi regime and it backed off to 8.50 last month.
They checked it again today but won't have results till next week. I've
been having some very unpleasant side effects from the avastin but if
it's knocking the CEA down I guess I'll keep plugging. I've never had
the CA-19 checked. how does that stack up against the CEA for
reliability.

Stage 4 colon cancer mucusal and signet ring cell with mets to omentum
and peritonium , diagnosed 12/22/05, debulked 12/23/05 started folfox7
chemo w/oxiliplatin 1/14/06.

CA 19.9 can be useful for gut tumors, its a bit more specific than CEA.

But if CEA is working reliably in your case stick with it.
Seeing you're responding to Avastin keep plugging it, the lower you can
get your markers the longer your remission will be.
Don't let yourself get side-tracked by diverticulae, questionable lung
nodes, unclear reports.
Get the hemorrhoids and the skin cancer dealt with quickly (usually
means surgically) and then get on with your life, which will be
shortened by your advanced cancer and thus too precious to be wasted in
hospitals and never-ending diagnostics..
--
madiba
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J W
medicine forum beginner


Joined: 10 May 2006
Posts: 22

PostPosted: Fri Jul 14, 2006 2:33 pm    Post subject: Re: NEED help with colon cancer issue. Reply with quote

Icing on he cake, I found out this week I have squamas (spelling) cell
cancer on my face which appears to be spreading
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J W
medicine forum beginner


Joined: 10 May 2006
Posts: 22

PostPosted: Fri Jul 14, 2006 2:29 pm    Post subject: Re: NEED help with colon cancer issue. Reply with quote

I was having severe pain when passing stoo, that is why we did the
coolonoscopy. Previous 3 scans over last 6 months (CT, PET & MRI) showed
are of difuse activity in same location as diverticula though not
inflamed.. I got three docs that say diverticula will cause that sort of
reading and three that say it won't, that only cancer will light up.
Same tree scans showed a spot of focal activity in the inferiormost part
of colon, near the rectal sigmoid junction. Latest MRI called it a mild
nodular enhancement suspicious of a recurant tumor, especially if it was
nearoriginal tumor site which it was not. Original mass was on right
side ascending colon at cecum. Colonoscopy doc said inside was clean as
a whistle except fr a hemroid issue whch was prolly the culprit causing
the pain. So I have no clue what is lighting up or how to get at it.
Onc. thinks it's cancer coming back on outsde of colon. If that's the
case then it's growing while on chemo which means chemo is a waste of
time.

Latest MRI also found that my prostate was swollen to the upper limit of
normal and had cysts on the right side. No clue what that means, that's
somehing new. Also previous scans showed lymph nodes (plural) in one
lung but they didn't light up, latest MRI only mentioned one lymph node
that was 1cm in size not sure what that means either.

Colon doc says possible that nodular activity on colon could just be
inflamation. Only way to know for sure is laproscopy and biopsy but Onc
already said if they did find new tumor they would not operate because
I''m stage 4. So I guess we just wait & see if it grows.
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Steph
medicine forum Guru


Joined: 03 May 2005
Posts: 504

PostPosted: Fri Jul 14, 2006 1:25 am    Post subject: Re: NEED help with colon cancer issue. Reply with quote

"J W" <jonboy42@webtv.net> wrote in message
news:400-44B6CBFB-1006@storefull-3257.bay.webtv.net...
Quote:
CEA had bgn rising from 2.5 to 12 overa two month period. They added
avastin to my foldox/oxi regime and it backed off to 8.50 last month.
They checked it again today but won't have results till next week. I've
been having some very unpleasant side effects from the avastin but if
it's knocking the CEA down I guess I'll keep plugging. I've never had
the CA-19 checked. how does that stack up against the CEA for
reliability.

Stage 4 colon cancer mucusal and signet ring cell with mets to omentum
and peritonium , diagnosed 12/22/05, debulked 12/23/05 started folfox7
chemo w/oxiliplatin 1/14/06.



With that history, recurrence is pretty well inevitable. The rising CEA
suggests it has happened.
If you have no symptoms, you need no treatment. I'd stop having tests
until/unless you do have symptoms
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J W
medicine forum beginner


Joined: 10 May 2006
Posts: 22

PostPosted: Thu Jul 13, 2006 10:40 pm    Post subject: Re: NEED help with colon cancer issue. Reply with quote

CEA had bgn rising from 2.5 to 12 overa two month period. They added
avastin to my foldox/oxi regime and it backed off to 8.50 last month.
They checked it again today but won't have results till next week. I've
been having some very unpleasant side effects from the avastin but if
it's knocking the CEA down I guess I'll keep plugging. I've never had
the CA-19 checked. how does that stack up against the CEA for
reliability.

Stage 4 colon cancer mucusal and signet ring cell with mets to omentum
and peritonium , diagnosed 12/22/05, debulked 12/23/05 started folfox7
chemo w/oxiliplatin 1/14/06.


Re: NEED help with colon cancer issue.

Group: sci.med.diseases.cancer Date: Thu, Jul 13, 2006, 11:58pm (EDT+6)
From: down@thekraal.com (madiba)
J W <jonboy42@webtv.net> wrote:
In the past 6 months I've had a CAT scan, a PET scan and now an MRI all
f the pelvis. All 3 scans say there is diffuse lighting up in the
sigmoid and that there is derviticula there, though not appearing to be
inflamed, which may or may not be causing it to light up. and that there
is focal activity (pet scan) or suspicious nodular enhancement (MRI) in
the rectal sigmoid junction. The latest of these scans (MRI) was just
this past monday. I had a colonoscopy today and he says the colon is
clean as a whistle no dervticula, polups, nothing. I got 3 different
types of scans that all say derviticula is there yet colonoscopy doc
says nothing there. How can this be????
Diverticula with narrow connections to the colon may go unnoticed in the
colonoscopy, particularly if the gut has been suboptimally cleaned. BUt
this just a radiology take on these results, dont know if a
gastroenterologist or surgeon can explain the discrepancy. Are your CEA
and CA 19.9 markers going up?
--
madiba
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madiba
medicine forum Guru Wannabe


Joined: 05 Jul 2005
Posts: 203

PostPosted: Thu Jul 13, 2006 9:58 pm    Post subject: Re: NEED help with colon cancer issue. Reply with quote

J W <jonboy42@webtv.net> wrote:

Quote:
In the past 6 months I've had a CAT scan, a PET scan and now an MRI all
f the pelvis. All 3 scans say there is diffuse lighting up in the
sigmoid and that there is derviticula there, though not appearing to be
inflamed, which may or may not be causing it to light up. and that there
is focal activity (pet scan) or suspicious nodular enhancement (MRI) in
the rectal sigmoid junction. The latest of these scans (MRI) was just
this past monday. I had a colonoscopy today and he says the colon is
clean as a whistle no dervticula, polups, nothing. I got 3 different
types of scans that all say derviticula is there yet colonoscopy doc
says nothing there. How can this be????

Diverticula with narrow connections to the colon may go unnoticed in the
colonoscopy, particularly if the gut has been suboptimally cleaned.
BUt this just a radiology take on these results, dont know if a
gastroenterologist or surgeon can explain the discrepancy.
Are your CEA and CA 19.9 markers going up?
--
madiba
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J W
medicine forum beginner


Joined: 10 May 2006
Posts: 22

PostPosted: Thu Jul 13, 2006 7:27 pm    Post subject: NEED help with colon cancer issue. Reply with quote

In the past 6 months I've had a CAT scan, a PET scan and now an MRI all
f the pelvis. All 3 scans say there is diffuse lighting up in the
sigmoid and that there is derviticula there, though not appearing to be
inflamed, which may or may not be causing it to light up. and that there
is focal activity (pet scan) or suspicious nodular enhancement (MRI) in
the rectal sigmoid junction. The latest of these scans (MRI) was just
this past monday. I had a colonoscopy today and he says the colon is
clean as a whistle no dervticula, polups, nothing. I got 3 different
types of scans that all say derviticula is there yet colonoscopy doc
says nothing there. How can this be????
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